|An Assessment of Parents' Awareness about Their Child's Congenital Heart Disease|
|Maryam Moradian1, Mohammad Rafie Khorgami1, Shahin Kakavand1, Nazanin Pishdadian1, Maryam Lotfisetan1, Fatemeh Adelag1, Behshid Ghadrdoost1, Shamsi Ghaffari2|
|1Rajaie Cardiovascular Medical and Research Center; Iran University of Medical Sciences, Tehran, Ira
2Cardiovascular Research Center, Tabriz University of Medical Sciences, Tabriz, Iran
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Keywords : Awareness, knowledge, Congenital Heart Disease
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Objectives: Parents with children suffering from congenital heart disease (CHD) are faced with severe emotional crisis. This study was conducted based on the idea that the more knowledgeable parents are about such diseases, the more it would contribute to their cooperation with the physician in the child’s treatment process.
Material and Methods:Parents’ information of 104 children referred to the outpatient clinic was collected in a questionnaire. The questionnaire contained five questions including; awareness of the name of the child's heart disease, the ability to indicate the location of the disease on a schematic image of the heart, knowledge of the symptoms of heart disease, awareness of the causes of CHD and the importance of children’s oral hygiene.
Results: Children’s mean age was 4.8±4.3 years. There was a significant relationship between mother and father's education, history of performed angiography or surgery with parental information from the name of heart disease, the ability to indicate the location of a child's defect on a schematic image of the heart, knowledge of heart disease symptoms and awareness about the causes of CHD (P<0.05).
Conclusion: In this study, parents’ information about their children’s heart disease is largely incomplete and generally related to the level of parents’ education. Currently, it seems like explanations provided by physicians about children’s illnesses does not play an effective role in creating awareness for parents, especially those with lower levels of education.
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